We’re finally here in Bethesda, Maryland for Gavin’s natural history study evaluation for Tay Sachs Disease at the NIH. The hopes of this study is to provide more information that would essentially be beneficial for gene therapy down the line. It’s not the cure whatsoever , but it’s one major step in hopefully getting there. We made a stop to Washington DC yesterday for Gavin to see the nation’s landmarks and monuments. It was beautiful, but the humidity was making Gavin uncomfortable.

Today, Gavin has been finally admitted to the NIH. Day 1, Gavin will be undergoing a bone density and hearing exam. More updates to come.